Neuro-endocrine Cancer Kenya (NECKENYA) is a registered non-profit organization dedicated to providing support and education to patients and families affected by neuro-endocrine tumors (NETs). We offer a variety of resources, including a patient forum, educational materials, and a financial assistance program. We also work to raise awareness of NETs and advocate for research into better treatments.
NECKENYA was founded in 2026 by a group of patients and families who were affected by NETs. We are national organization in Kenya. We are committed to providing support and education to those affected by these tumors, and we are working to improve the lives of patients and families through research and advocacy.
Our Mission
To raise awareness about neuro-endocrine and related cancers and to assist patients in Kenya in accessing optimal treatment, care, and education.
Objectives
To create awareness and improve diagnosis and treatment for neuro-endocrine tumours
Be a platform for sharing current developments, referrals and experiences about neuro-endocrine cancer in Kenya
Help cancer patients access treatment and recover from the physical and emotional effects of cancer
Advocate for funding and research about NET cancer and other cancers in Kenya
Collaborate with healthcare professionals in Kenya for NET cancer screening, treatment and better management of disease
Our Activities
2026: Cancer Survivors Day Walk
On 7th June 2026, the Kenya Network of Cancer Organizations (KENCO) hosted a Cancer Survivors Walk at the Kenyatta National Hospital Grounds, bringing together survivors, caregivers, healthcare professionals, and advocates to celebrate resilience while raising awareness about cancer.
The event highlighted the importance of early screening and timely diagnosis, with a special focus on rare cancers, including Neuro-endocrine Tumours. Patricia Karani shared her inspiring journey to receiving a NET diagnosis, emphasizing the challenges of living with a rare cancer and the hope that comes through accurate diagnosis, treatment, and support.
The symbolic 10 kilometre walk reflected the courage, resilience, and determination of cancer patients throughout their survivorship journey. The event reinforced a powerful message that, despite the challenges of cancer, survivorship is possible, and that continued awareness, education, and advocacy are essential to improving outcomes for all those affected by cancer.